Skye was a much loved sister
What does a family do? Sit on their hands? We did not . . .
Once she was stabilised we began ways to turn on your brain cells
Always battling her resistances – this was not fun.
Screaming all night
Refusing to sleep
Being so sick – so often.
And we persevered . .
We began the battle to keep her alive, to pare back the handicaps, to give her what I regarded as her birthright – her humanity. It took eight years of our lives. A battle was waged. Not on the obvious front, although that was also a battle, often daily,
A war of wills
Hers and mine,
Mine and her father’s,
And of living WELL
She has another family
